Sevigny is Taking Over the Blog and the World!

Dear people out there,                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                     My name is Sevigny Aslin Park, you may have heard of me on my Super Sevi Blog. I haven’t written any thing on my blog yet which I think is weird… I mean what’s the idea of having a blog if you don’t write anything yourself am I right or am I am I right? I’m what some people call a reading nerd or geek but I like to be called a… how do I say… Super Reading Sconce Kid! I don’t hide in the shadows or act like a teasing bully. I am a smart, playful, strong, cool 9 year old girl who loves any kind of pet and wants to be a animal vet when I grow up. I love meeting kids who are sweet, caring, nice, loves animals, soccer, reading, sconce, learning, loves horses, and camp stuff. I also like riding horses and taking care of hurt animals. I have a big happy family, a 30 year old dad, 29 year old mom, 5 year old sister and a 9 month baby sister who can be really annoying and loud but she’s family and I love my family.

I go to the hospital a lot every week and it really sucks. I hate cancer and diseases like it. This blog is my side of the story of cancer and the only person I want to tell it is me Sevigny Park and every part of it is true. It all started a few weeks before Halloween, I started having problems breathing and keeping up with dad on walks, one of my favorite things to do with him. Me and my family only thought it was just muscle aches or asthma  my mom thought so too. So we all listened  to her because mom is a master muscle person. But a week after Halloween I had to go to the doctor’s office on a school day at 12.00! It was the weirdest thing ever! I had to go to the hospital that night and  I had to stay at a hospital for a whole week until the doctor’s found out I had cancer. A few weeks after my hair fell out we had to shave my head or else we would have  an apartment full of hair. A week later our apartment flooded and we had to move to a cute little house in a cool little neighborhood. The neighborhood is like a damp swamp when it’s raining I think it’s really cool. I’m really into scary stuff like Goosebumps and Haunting Hour so I’m looking for new friends who like to read, write, and sing but I get along with everyone! Unless there bullies I hate bullies!

Well I’m thinking of writing a scary book for kids but I won’t be drawling the cover and it’s not going to be a silly picture book, it’s going to be a chapter book, so sorry picture lovers!

Bye for now!

 

Hi again it’s me Sevigny I want to give you a little book trailer from my new book Vampires At Dusk enjoy!

Once upon a time vampires roamed the night looking for blood. I Gabby Drone am doing all I can to keep my family safe from those blood suckers. It’s getting harder and harder to protect my family that’s why i’m training myself to get strong. I didn’t know  that when I was out at the store a vampire had broken into my house and bit my whole family who turned into vampires! I got bitten by my little sister who said she wanted a hug so I turned into a vampire too. We went hunting for blood for the first time we could not catch a human so we drank raccoon blood.

Well that’s it for now kids see you next time to read the whole story!

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Sevi’s Labs are Lookin’ Good!

Hi all, We’ve been silent on the blog for a bit because things have been so hectic. Balancing three kids (one of them a teething infant monster, one of them sick with cancer), jobs, and a new city has been tough. I wanted to share a bit of good news:

Last week, we found out that Sevi’s body is responding to the more aggressive cancer treatment! Her labs show that the cancer is undetectable. This does not mean she is cancer-free or in remission, just that the treatment is working as it was intended. FINALLY!

Otherwise, no changes. She is still on track for chemo for the next 2-3 years. This past week, she has been admitted to the hospital (a scheduled admission) so she can be treated with a very toxic chemotherapy drug. Did you know there are cancer drugs so toxic that people can’t be around others when they are on them? What?! Crazy, huh? She gets admitted for four days, stays here all day and night, and gets this medicine. Then, when it’s out of her system, she can come home (tomorrow).

Patrick and I have been taking shifts going to the hospital. And he is still working! A real father superhero! It’s still pretty hard with all the kids and Rowan teething and not sleeping through the night. It’s a real stressor for us all. Sevi is such a big girl though, she stays by herself at night at the hospital and does just fine. She’s growing up, in a weird, unexpected sort of way.

That’s all for now. Thanks for all the help and support. We continue to want and need your texts/ calls/ letters showing support during this time.

Sevi Update 2/1/16: Allergic Reaction

Today’s update is mostly about medicine–the good and the bad.images

Sevigny goes to chemotherapy each week on Fridays–she is now a “Friday girl.” Each Friday, we go to the hospital, not knowing whether it will be 2-hour routine stuff or an 8-hour marathon, complete with anesthesia, blood draws, and demon-in-a-blessing’s-clothes chemotherapy. We’re always nervous on Friday, and the anxiety starts the Thursday night before. This last Friday, we had reason to be nervous.

In case you have not been following, Sevigny’s leukemia has not responded completely to the first course of chemotherapy treatment. Her risk level went from standard to high. Although the survival rate for ALL (her type of leukemia) is 85% overall, she had a higher chance of surviving when she was first diagnosed.

Now, her chances for survival have lowered to somewhere around 85%, which has warranted the use of more aggressive, dangerous drugs.

This last Friday, Sevigny received her first course of asparaginase–one of the more aggressive chemotherapy drugs used to treat leukemia. This medicine, which could save Sevi’s life, has some terrible side effects–so nasty that we cried when we first found out she needed the drug. Some side effects include inflammation of her pancreas, and loss of fertility. It’s weird to think about my 8-year-old daughter and her fertility, but that’s what cancer does to a parent.

Sevi experienced the first (and most common side effect): she was allergic to the medicine. I’m not talking itchy skin allergic. She received it via IV, so there was no turning back. Immediately, she screamed at the top of her lungs, her breathing slowed, her skin turned into one big giant hive, and she started kicking the nurses away because she was in so much pain. Her doctors used an epipen right away to help her stabilize, but she had to be admitted to the ICU overnight. It was a very scary night, not knowing if she would be okay, not being able to stay with her (our baby, Rowan, is not allowed on the ICU–no babies are). We feel so helpless sometimes.

Since then, Sevigny has returned home safe and sound. She still needs that darned drug, though, so the doctors prepared it differently and will give her two injections of it every Monday, Wednesday, and Friday this week and next week. We have to be with her. Yesterday was the first dose, and she did not have any allergic response! We are so, so thankful. Still nervous about tomorrow (Wednesday), but things are slightly improving.

Sevigny’s 9th birthday is February 7. We will be updating our wish list with some birthday gifts for Sevigny. We really want to take this good news about the injection and keep the momentum going for our sweet 9 year old! Hopefully, pictures will follow.

Until then, thank you for reading and being with us. Sevigny would love to hear from you–blog, call parents, or letters.