Sevi Update 2/1/16: Allergic Reaction

Today’s update is mostly about medicine–the good and the bad.images

Sevigny goes to chemotherapy each week on Fridays–she is now a “Friday girl.” Each Friday, we go to the hospital, not knowing whether it will be 2-hour routine stuff or an 8-hour marathon, complete with anesthesia, blood draws, and demon-in-a-blessing’s-clothes chemotherapy. We’re always nervous on Friday, and the anxiety starts the Thursday night before. This last Friday, we had reason to be nervous.

In case you have not been following, Sevigny’s leukemia has not responded completely to the first course of chemotherapy treatment. Her risk level went from standard to high. Although the survival rate for ALL (her type of leukemia) is 85% overall, she had a higher chance of surviving when she was first diagnosed.

Now, her chances for survival have lowered to somewhere around 85%, which has warranted the use of more aggressive, dangerous drugs.

This last Friday, Sevigny received her first course of asparaginase–one of the more aggressive chemotherapy drugs used to treat leukemia. This medicine, which could save Sevi’s life, has some terrible side effects–so nasty that we cried when we first found out she needed the drug. Some side effects include inflammation of her pancreas, and loss of fertility. It’s weird to think about my 8-year-old daughter and her fertility, but that’s what cancer does to a parent.

Sevi experienced the first (and most common side effect): she was allergic to the medicine. I’m not talking itchy skin allergic. She received it via IV, so there was no turning back. Immediately, she screamed at the top of her lungs, her breathing slowed, her skin turned into one big giant hive, and she started kicking the nurses away because she was in so much pain. Her doctors used an epipen right away to help her stabilize, but she had to be admitted to the ICU overnight. It was a very scary night, not knowing if she would be okay, not being able to stay with her (our baby, Rowan, is not allowed on the ICU–no babies are). We feel so helpless sometimes.

Since then, Sevigny has returned home safe and sound. She still needs that darned drug, though, so the doctors prepared it differently and will give her two injections of it every Monday, Wednesday, and Friday this week and next week. We have to be with her. Yesterday was the first dose, and she did not have any allergic response! We are so, so thankful. Still nervous about tomorrow (Wednesday), but things are slightly improving.

Sevigny’s 9th birthday is February 7. We will be updating our wish list with some birthday gifts for Sevigny. We really want to take this good news about the injection and keep the momentum going for our sweet 9 year old! Hopefully, pictures will follow.

Until then, thank you for reading and being with us. Sevigny would love to hear from you–blog, call parents, or letters.

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9 comments

  1. Robert Park · February 3, 2016

    THANKS for the Update (saddens me) and the new Wish list- will be straight from Amazon!

    Liked by 1 person

    • Sherry Sawyer · February 3, 2016

      I read the Blog & stay in prayer for this princess & her family. I do hope they can find the package that we sent to Highlands Ranch CO 80126. We didn’t know about the new address, however, we have it now for future reference. Many blessings & Much love to all!!
      Sherry

      Liked by 1 person

      • brittepark · February 27, 2016

        Sherry, thank you so much for your thoughtful package and prayers! Our family feels really lucky to have support we didn’t even know we had. You are such a sweet lady and our girls appreciate everything. Have a wonderful day! 😊

        Like

  2. Patty Park · February 3, 2016

    My dearest Sevi Girl…..NEGU !!!
    LUVU 4 EVER !!!! MEEM

    Liked by 1 person

  3. Robert Park · February 7, 2016

    HAPPY Birthday Sevi!!! Happy Birth Day to You!!!! May it be filled with Happy wishes and Stuff!

    Liked by 1 person

  4. Patty Park · February 7, 2016

    HAPPY HAPPY BIRTHDAY SEVI GIRL!!!!
    HOPE YOUR PARTY IS AWESOME! !
    Year 9 will be a very enlightened year for you
    I felt soooo HAPPY after we talked Thursday, you sounded like the Sevi I know and love so much!!!! NEGU….LUVU Meem!
    GO BRONCOS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    Liked by 1 person

  5. X · February 7, 2016

    Sevi,I realy miss you. If you want me to I can visit you at the hospital 🏩🌈 We’re always bfffls. Love Gabby🎗

    Liked by 1 person

  6. X · February 7, 2016

    Happy Birthday Sevi🍰🍦🍧🍭🍩

    Liked by 1 person

  7. Sherry Sawyer · February 8, 2016

    Happy birthday pretty princess. I sure hope you had a very blessed & happy day. I don’t know you but I sure do love you. Maybe one day we will meet face to face!!!!

    Liked by 1 person

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