Sevigny as big sister when Rowan, our littlest, was born in July.
Hello to all you wonderful and caring folks. This is an update on Sevi’s health.
Our beautiful, caring firstborn has been going through a lot of physical changes recently. The cancer treatment, as expected, is about as rough as the diagnosis itself.
- bone marrow biopsy–to look at the cancer cells more closely to see if her risk level has changed.
- blood and fluids drawn
- lumbar puncture–they withdraw spinal fluid to get a better look at her cells. Here is a drawing of what it looks like for a child.
All the tests showed that the cancer is not responding as well as expected. Sevi’s chances of being cured from this horrible disease went from 91% to 85% this week. These are still good chances, but we’re scared.
So, the doctors and we have agreed to make her treatment more aggressive. She will start new chemotherapy meds (who knew there were so many?).
And an even darker side of this drab coin is that the new medications have the potential to have terrible side effects later in life for Sevi–ones that affect her reproductive system, her menstrual cycle, and possibly her ability to have children.
I had no idea all this was coming. We can barely process it all and carry on with our regular lives. It’s not our regular lives, though. Some things are falling back into normal routine, but nothing feels normal.
Thank you all for your support to remind of us of the people out there thinking and helping us. We need it.